Dancing in the Rain

Max and Addie's Extraordinary Journey

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ABOUT ME

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About Me

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Stephanie
I am the proud mom of two very special children. My babies were born 9 weeks early with a rare genetic kidney condition that required 8 months in the NICU and over a year of dialysis. I donated my kidney to my daughter when she was 17 months old and my husband donated his kidney to our son when he was 2 years old. We are living life as a one kidney family and loving life without dialysis. At 3 the kids each have their own challenges. Addie has moderate hearing loss and is learning to talk but otherwise as healthy and happy as can be! Max experienced traumatic brain injury around birth and is living with a severe form of cerebral palsy. He has lots of lingering health issues but his amazing smiles are infectious and he is a happy loved little boy. This blog chronicles my life as their mom.
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