Just thought I'd put a timeline of their diagnoses, surgeries and major events here:
DECEMBER 22, 2010- Max and Addison are BORN!!! 9 weeks early. Max weighs 3lb 15oz and Addie weighs 3lb 14oz at Memorial Hermann the Woodlands
DECEMBER 25, 2010- I am released from the hospital. Addie does not require any breathing assistance (is on room air) and we get to hold her! Max has a pulmonary bleed (lung bleed) that evening and requires heavy sedation and increased vent settings.
DECEMBER 31, 2010- Max comes off the ventilator and onto CPAP and I get to hold him for the first time
JANUARY 16, 2011- DIAGNOSIS DAY: Max and Addie are diagnosed with Congenital Nephrotic Syndrome. Low protein was discovered in Max's blood during bloodwork to try and determine the cause of his respiratory breathing issues. A urine test and a kidney ultrasound and contact with the nephrologists downtown led them to realize that Max had a rare genetic disorder whereby his kidneys were dumping protein into his blood. Because it was a genetic condition, they tested Addie too and she also had it.
